Mucopolysaccharidosis I (MPS I)
Mucopolysaccharidosis I (MPS I)
Your Guide to
Mucopolysaccharidosis I (MPS I)
Although there is no cure for MPS I, treatments can improve the quality of life -- especially when started early. They slow the disease and help stop damage before it starts.
Most kids who have less severe MPS I can go to school with other children. They'll go through puberty and can have kids of their own. Adults are protected by the Americans with Disabilities Act, so they might be able to work and live on their own.
When the disease is more severe, it moves faster. Children with the most severe form usually get worse very quickly, and they might not live to be teenagers. Special care focuses on easing pain and offering support, so your child and your family can have the best quality of life.
To learn more about MPS I, visit the National MPS Society web site. You can also find ways to connect with other people living with the disease.
Mucopolysaccharidosis I (MPS I)
What to Expect
Your Guide to
Mucopolysaccharidosis I (MPS I)
- What Is MPS I?
- Causes
- Symptoms
- Getting a Diagnosis
- Questions for Your Doctor
- Treatment
- Taking Care of Your Child
- What to Expect
- Getting Support
Although there is no cure for MPS I, treatments can improve the quality of life -- especially when started early. They slow the disease and help stop damage before it starts.
Most kids who have less severe MPS I can go to school with other children. They'll go through puberty and can have kids of their own. Adults are protected by the Americans with Disabilities Act, so they might be able to work and live on their own.
When the disease is more severe, it moves faster. Children with the most severe form usually get worse very quickly, and they might not live to be teenagers. Special care focuses on easing pain and offering support, so your child and your family can have the best quality of life.
Getting Support
To learn more about MPS I, visit the National MPS Society web site. You can also find ways to connect with other people living with the disease.
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